Links

Links:

Bleeding Disorders

• National Hemophilia Foundation
  http://www.hemophilia.org
• NHF’s Steps For Living
  www.stepsforliving.hemophilia.org
• NHF’s Victory for Women
  www.victoryforwomen.com
• My Life, Our Future
  www.mylifeourfuture.org
• Hemophilia Federation of America
  http://www.hemophiliafed.org
• World Federation of Hemophilia
  http://www.wfh.org
• Committee of Ten Thousand (COTT)
  http://www.cott1.org
• Centers for Disease Control
  http://www.cdc.gov
• LA Kelley Communications/PEN Newsletter
  http://www.kelleycom.com
• Patient Notification System
  www.patientnotificationsystem.org
• Blood Products Hotline
  http://www.fda.gov/BiologicsBloodVaccines/SafetyAvailability/Recalls/default.htm

Hepatitis Web Sites

• American Liver Foundation
  http://www.liverfoundation.org
• National Institute of Allergy and Infectious Diseases
  http://www.niaid.nih.gov/default.htm
• Viral Hepatits CDC site
  http://www.cdc.gov/ncidod/diseases/hepatitis/index.htm
• National Hepatitis C Advocacy Council
  http://www.hepcnetwork.org/

HIV/AIDS Sites

• Aids Info
  http://www.aidsinfo.nih.gov
• American Foundation for AIDS Research
  http://www.amfar.org/
• HIV and Hepatitis
  http://www.hivandhepatitis.com
• JAMA HIV/AIDS Resource Center
  http://www.ama-assn.org

Advocacy

• Patient Advocate Foundation
  http://patientadvocate.org

Research

• NHF’s Research Grants and Fellowships
  https://www.hemophilia.org/Researchers-Healthcare-Providers/Research-Grant-Programs
• The Scripps Research Institute
  http://www.scripps.edu

Misc.

• UDC/ATHN
  http://www.cdc.gov/ncbddd/blooddisorders/udc/ and http://www.athn.org/

• NHF’s Medical and Scientific Advisory Committee (MASAC)
  https://www.hemophilia.org/Researchers-Healthcare-Providers/Medical-and-Scientific-Advisory-Council-MASAC

• MedicAlert
  http://www.medicalert.org

Sponsors

• Shire (formally Baxalta)
  www.baxaltahemotology.com/us and www.advate.com
• Indiana Hemophilia and Thrombosis Center
  http://www.ihtc.org/

 

The above links are for research and information and do not always reflect the views and stance of Hemophilia of Indiana. Should you have any questions or if a link is no longer active please contact the HoII offices.